Name: Carla Renata da Silva Pacheco
Type: MSc dissertation
Publication date: 10/09/2019
Advisor:

Namesort descending Role
Walckiria Garcia Romero Sipolatti Advisor *

Examining board:

Namesort descending Role
Andressa Bolsoni Lopes Co advisor *
Cândida Caniçali Primo Internal Examiner *
Carlos Alberto da Cruz Sequeira External Examiner *
LUCIANA DE CASSIA NUNES NASCIMENTO External Alternate *
Mirian Fioresi Internal Alternate *
Walckiria Garcia Romero Sipolatti Advisor *

Summary: Introduction: Hemophilia is an X-linked hemorrhagic disease characterized by deficiency or absence of coagulation factor VIII (hemophilia A) or IX (hemophilia B). Therapeutic treatment is based on the administration of coagulation factors, which may occur on demand or prophylactic. The National Hereditary Coagulopathies Program provides for intravenous self-infusion of coagulation factor by the person with hemophilia or family member whenever bleeding, trauma, or prophylactic coagulation factor infusion is suspected. For this, the person with hemophilia should participate in training on the application of intravenous coagulation factor. Collaborating in this teaching-learning process, educational technologies can provide the development of skills and knowledge for care during educational actions. Objectives: To develop and validate educational technologies on intravenous coagulation factor infusion for home care of people with hemophilia. Methodology: Methodological study, developed in three stages: elaboration of educational technologies (booklet and infographic); content and appearance validation by judges and appearance validation by people with hemophilia. The content of educational technologies was elaborated on scientific basis, through literature review and supported by the precepts of Vygotsky’s Interactionist Theory. The search for judges was by snowball sampling and for content validation, it was decided to use the Delphi technique in two rounds. The criterion for validation by the judges was the agreement greater than 0,80, analyzed through the Content Validity Index (CVI). For appearance validation by the target audience, the agreement level of positive answers (“yes”) greater than or equal to 80% was considered. For data collection, different instruments were used, according to the assessment focus of each group of participants. Results: In the first round of content validation, 11 judges participated; in the second, seven judges. While the booklet and the infographic presented an overall CVI of 0,90 in the first round, with suggestions for illustration reformulation, substitution or deletion of terms and simplification of sentences, in the second round,

the CVI was 0,96, with only one modification suggestion. For the validation of appearance, ten people with hemophilia agreed to participate in the study, obtaining agreement level of positive responses higher than 80% in both technologies, totaling: 99.2% for the primer and 100% for the infographic. Products: This work enabled the elaboration of an educational booklet and a step-by-step action infographic with guidance on the home intravenous infusion of the coagulation factor to the person with hemophilia, as well as a scientific article on the subject in question. Final considerations: The booklet and infographic were elaborated and validated by judges and people with hemophilia. In addition to being unprecedented, such technologies can contribute to the teaching-learning process and increase patient adherence to treatment. It should also be noted that the technologies elaborated in this dissertation have the consent of the State Health Secretary of Espírito Santo to be incorporated by the state health network and will be used in the clinical practice of the researcher.

Descriptors: Hemophilia; Home treatment; Intravenous administration; Educational technology.

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